Publication:
Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives

dc.contributor.coauthorİncesoy Özdemir, Sonay
dc.contributor.coauthorTaçyıldız, Nurdan
dc.contributor.coauthorVaran, Ali
dc.contributor.coauthorKebudi, Rejin
dc.contributor.coauthorZülfikar, Bülent
dc.contributor.coauthorCelkan, Tiraje
dc.contributor.coauthorŞahin, Gürses
dc.contributor.coauthorÇorapcıoğlu, Funda
dc.contributor.coauthorKeskin Yıldırım, Zuhal
dc.contributor.coauthorPınarlı, Faruk Güçlü
dc.contributor.coauthorOlgun, Nur
dc.contributor.coauthorSarı, Neriman
dc.contributor.coauthorDağdemir, Ayhan
dc.contributor.coauthorÖzyörük, Derya
dc.contributor.coauthorEren, Tuba
dc.contributor.coauthorÇakır, Fatma Betül
dc.contributor.coauthorAdaklı Aksoy, Başak
dc.contributor.coauthorBozkurt, Ceyhun
dc.contributor.coauthorGüler, Elif
dc.contributor.coauthorÖzgüven, Ali Aykan
dc.contributor.coauthorBerber, Melda
dc.contributor.coauthorDinçaslan, Handan
dc.contributor.coauthorÜnal, Emel
dc.contributor.coauthorKantar, Mehmet
dc.contributor.departmentKUH (Koç University Hospital)
dc.contributor.kuauthorErbey, Mehmet Fatih
dc.contributor.schoolcollegeinstituteKUH (KOÇ UNIVERSITY HOSPITAL)
dc.date.accessioned2024-11-09T12:30:18Z
dc.date.issued2020
dc.description.abstractAim: the main purpose of this study is to determine the current status of long-term follow-up (LTFU) for childhood cancer survivors and the challenges of LTFU for pediatric cancer survivors at pediatric oncology institutions in Turkey. Material and methods: a questionnaire was e-mailed to the directors of 33 pediatric oncology centers (POCs) registered in the Turkish Pediatric Oncology Group (TPOG). Of these 33 active TPOG institutions, 21 participated in the study and returned their completed questionnaires. Results: only 1 of the 21 participating centers had a separate LTFU clinic. The remaining centers provided LTFU care for childhood cancer survivors at the pediatric oncology outpatient clinic. Of these centers, 17 (80.9%) reported difficulty in transition from the pediatric clinic to the adult clinic, 14 (66.6%) reported insufficient care providers, and 12 (57.1%) reported insufficient time and transportation problems. As neglected late effects, 16 (76.1%) centers reported psychosocial and getty job problems and 11 (52.3%) reported sexual and cognitive problems. None of the centers had their own LTFU guidelines for their daily LTFU practice. Conclusion: this study was the first to gain an overview of the needs of POCs and the gaps in survivorship services in Turkey. The results from this study will help to develop a national health care system and national guidelines for pediatric cancer survivors.
dc.description.fulltextYES
dc.description.indexedbyWOS
dc.description.indexedbyScopus
dc.description.indexedbyPubMed
dc.description.issue8
dc.description.openaccessYES
dc.description.publisherscopeNational
dc.description.sponsoredbyTubitakEuN/A
dc.description.sponsorshipN/A
dc.description.versionPublisher version
dc.description.volume50
dc.identifier.doi10.3906/sag-1911-193
dc.identifier.eissn1303-6165
dc.identifier.embargoNO
dc.identifier.filenameinventorynoIR02568
dc.identifier.issn1300-0144
dc.identifier.quartileN/A
dc.identifier.urihttps://doi.org/10.3906/sag-1911-193
dc.identifier.wos600735500021
dc.keywordsLong term follow-up
dc.keywordsSurvivorship
dc.keywordsPediatric oncology
dc.keywordsTurkey
dc.language.isoeng
dc.publisherTÜBİTAK
dc.relation.grantnoNA
dc.relation.ispartofTurkish Journal of Medical Sciences
dc.relation.urihttp://cdm21054.contentdm.oclc.org/cdm/ref/collection/IR/id/9207
dc.subjectMedicine
dc.titleCross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives
dc.typeJournal Article
dspace.entity.typePublication
local.contributor.kuauthorErbey, Mehmet Fatih
local.publication.orgunit1KUH (KOÇ UNIVERSITY HOSPITAL)
local.publication.orgunit2KUH (Koç University Hospital)
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relation.isParentOrgUnitOfPublication055775c9-9efe-43ec-814f-f6d771fa6dee
relation.isParentOrgUnitOfPublication.latestForDiscovery055775c9-9efe-43ec-814f-f6d771fa6dee

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