Researcher:
Doenyas, Ceymi

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Ceymi

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Doenyas

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    A novel adaptive web-based environment to help deafblind individuals in accessing the web and lifelong learning
    (Springer Nature, 2020) Shohieb, Samaa M; Haji, Shaibou Abdoulai; N/A; Doenyas, Ceymi; PhD Student; Graduate School of Social Sciences and Humanities; 277852
    Deafblindness is a combination of hearing and sight impairment that affects how a person accesses information and communicates with others. This paper presents the design, implementation, and validation of a creative adaptive web-based environment to support deafblind individuals in their web accessibility and life-long learning processes. This system adapts to deafblind users’ degree of loss of senses. It retrieves the web page content using dumbing of DOM (Document Object Model) technique and converts the retrieved content into an appropriate format. If the user can hear, the text is transformed into speech. If they have some sight sense, the content is transformed to screen-based Picture Exchange Communication System (PECS) presentation technique. However, if the user has an entirely dual sensory loss, the web page content is transformed into a tactile presentation technique (Moon code or Braille) that can be printed with a special embosser printer on swelled paper or touched using a display device. In the tests performed to deafblind users, this system obtained about 85% user satisfaction. This novel adaptable system that has been tested with users offers the benefit of easing at least some of the daily challenges faced by these individuals and of aiding them in web accessibility and lifelong learning content.
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    Dietary interventions for autism spectrum disorder: new perspectives from the gut-brain axis
    (Pergamon-Elsevier Science Ltd, 2018) Doenyas, Ceymi; PhD Student; Koç University Research Center for Translational Medicine (KUTTAM) / Koç Üniversitesi Translasyonel Tıp Araştırma Merkezi (KUTTAM); Graduate School of Social Sciences and Humanities; N/A
    There is still controversy surrounding the effectiveness of dietary interventions for autism spectrum disorder (ASD), namely the gluten-free/casein free diet and the ketogenic diet. Additionally, as studies mainly investigated their impact on ASD symptoms and behaviors, much remains unknown about their mechanisms of action and physiological effects. Given the recent surge of global interest in the gut-brain axis and its involvement in ASD, we underline the importance of understanding the physiological effects of such restrictive diets that remove certain nutritional items from one's diet. Some evidence has emerged with findings of the gut microbial, inflammatory, and neuronal effects of these diets. We propose probiotics as a potential alternative that can serve similar biological purposes as these elimination diets and outline different physiological routes whereby probiotics can lead to improvements for individuals with ASD. We hope that future research can delineate the complete physiological effects of these diets. Such knowledge can guide the creation of more informed interventions, which conserve the components resulting in positive behavioral change while being less restrictive and devoid of the harmful effects of limiting certain nutrients.
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    Autism in Turkey: demographics, behavior problems, and accompanying medical conditions in a sample of Turkish youth with autism spectrum disorder
    (Taylor & Francis Ltd) Ekici, Baris; Unay, Oyku Su; Gonen, Ismail; Tatli, Burak; Doenyas, Ceymi; PhD Student; Koç University Research Center for Translational Medicine (KUTTAM) / Koç Üniversitesi Translasyonel Tıp Araştırma Merkezi (KUTTAM); Graduate School of Social Sciences and Humanities; 277852
    Autism spectrum disorder (ASD) is an etiologically heterogeneous neurodevelopmental condition that eludes a single explanation or cure. Epidemiological studies reveal risk factors, relevant comorbidities, and behavioral correlates to reach a better understanding of ASD. To contribute such data from an understudied ASD population, this paper presents epidemiological data from a Turkish sample of individuals with ASD (n = 911, 748 boys (82.1%) and 163 girls (17.9%) between 1 and 18 years of age). Average age at diagnosis was 31.06 +/- 11.88 months, and the male-to-female ratio was 4.6:1. Three in 4 individuals with ASD had obsessive behaviors, and 1 in 4 had allergic conditions, inappropriate sexual behaviors, self-harming behaviors, and harmful behaviors towards others. One in 3 received a dietary treatment for at least 3 months; almost half received vitamin supplements; the majority (70%) did not experience constipation; and 2 in 3 were picky eaters. This paper presents data on the age of diagnosis, gender ratios, accompanying behaviors, and dietary interventions in Turkish individuals with ASD, which are topics of current research interest about ASD. Such data from non-Western populations may supplement epidemiological knowledge gained from Western populations to help reach a more comprehensive understanding of this condition with many unknowns.
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    The social living complex: a new, all day, yearlong intervention model for individuals with autism spectrum disorder and their parents
    (Springer, 2016) Doenyas, Ceymi; PhD Student; Graduate School of Social Sciences and Humanities; 277852
    We propose an unprecedented intervention for individuals with autism spectrum disorder (ASD) and their parents: the social living complex. Unlike existing social skills interventions, peer-mediated interventions here are not limited to the school/experiment duration and setting. Whereas other supported living services house adults with ASD only, here children with ASD and their families live and interact with typically developing (TD) individuals. Another novelty is support groups for parents of children with ASD, who report feeling higher levels of stress than parents of TD children and children with other disabilities, feeling isolated, and not receiving social support. This complex will enable the practice and generalization of schooled skills in the lives of children with ASD and foster an accepting, autism-friendly community.
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    Investigation of the relationship between physical problems and aberrant behavior categories in autism spectrum disorder
    (Galenos Yayınevi, 2020) N/A; N/A; N/A; Mutluer, Tuba; Doenyas, Ceymi; Faculty Member; PhD Student; Koç University Research Center for Translational Medicine (KUTTAM) / Koç Üniversitesi Translasyonel Tıp Araştırma Merkezi (KUTTAM); School of Medicine; Graduate School of Social Sciences and Humanities; 305311; 277852
    Objectives: Autism spectrum disorder is a neurodevelopmental conditiona that manifests with impairments in social interactions and communication and repetitive behaviors and restricted interests. It is known that autism spectrum disorder is accompanied by medical comorbidities, and as the number of accompanying comorbidities increase, the intensity of aberrant behaviors also increases in individuals with autism spectrum disorder. Yet, how subgroups of aberrant behaviors relate to physical complaints with unknown primary etiology in autism spectrum disorder has not yet been investigated. Understanding and solving these physical problems can improve the quality of life of individuals with autism spectrum disorder, as interventions should not only address core autism spectrum disorder symptoms but also all physical complaints affecting an individual’s life. Additionally, an examination of such a relation may help better understand the underlying mechanisms of autism spectrum disorder. Materials and Methods: In this study, in 64 individuals with autism spectrum disorder (11 girls) aged between 6 and 18 years, the relationship between the physical complaints subcategory of Child Behavior Checklist and the severity of autism spectrum disorderaccording to Childhood Autism Rating Scale was examined. Additionally, the relationship between physical complaints and the subgroups of the Aberrant Behavior Checklist was evaluated. Results: A significant positive correlation was found between physical symptoms and autism spectrum disorder severity. Among the five factors of this checklist (irritability, agitation, crying; lethargy, social withdrawal; stereotypic behavior; hyperactivity, non-compliance; inappropriate speech), only hyperactivity/non-compliance and inappropriate speech correlated with physical complaints. This relationship was independent of sociodemographic factors such as child age, parental age, and parental education. Conclusion: These findings indicate that children with autism spectrum disorder who exhibit extreme mobility and disobedience are at risk of physical discomfort. In addition to psychiatric and psychologic examinations, a comprehensive and holistic approach should be adopted for individuals with autism spectrum disorder, especially for those individuals experiencing physical problems. / Amaç: Otizm spektrum bozukluğu sosyal beceri eksikliği ve yineleyen davranışlar ile kısıtlı ilgi alanlarını içeren nörogelişimsel bir durumdur. Bugüne kadar alanyazında fiziksel rahatsızlıklar ile otizm şiddeti arasındaki ilişki incelenmiş, ancak birincil nedeni bilinmeyen bedensel rahatsızlıkların otizme eşlik eden sorun davranış alt grupları ile ilişkisi araştırılmamıştır. Otizme eşlik eden fiziksel sorunların anlaşılması ve çözümlenmesi bu bireylerin hayat kalitelerinin iyileşmesini sağlayabilir. Ayrıca bu ilişkinin incelenmesi, otizmin altında yatan nedensel mekanizmaların daha iyi anlaşılmasına yardımcı olabilir. Gereç ve Yöntem: Çalışmada, 6-18 yaş arası 64 otizmli bireyde (11 kız), bedensel rahatsızlıkların otizm şiddeti ve otizmdeki sorunlu davranışlar ile ilişkisi araştırılmıştır. Bu amaç doğrultusunda, 4-18 Yaş Grubu Çocuk ve Gençler İçin Davranış Değerlendirme Ölçeği’nin alt ölçeklerinden biri olan bedensel rahatsızlık kategorisi ile Çocukluk Otizmi Derecelendirme Ölçeği aracılı ölçülen otizm şiddeti ve Otizm Sorun Davranış Listesi’nin alt başlıkları arasındaki olası ilişki incelenmiştir. Bulgular: Otizmin şiddeti ile bedensel şikayetler arasında anlamlı bir ilişki bulunmuştur. Ayrıca otizme eşlik eden sorun davranışlar olan huzursuzluk, atalet ve sosyal içe kapanıklık, yinelenen davranışlar, aşırı hareketlilik ve itaat etmeme ile uygun olmayan konuşma davranış alt grupları arasından sadece aşırı hareketlilik ve itaat etmeme ile bedensel şikayetler arasında anlamlı bir ilişki bulunmuştur. Bu ilişkinin çocuk yaşı, anne-baba yaşı ve anne-baba eğitimi gibi sosyodemografik etmenlerden bağımsız olduğu gösterilmiştir. Sonuç: Bu bulgular, otizmde aşırı hareketlilik ve itaatsizlik gösteren çocukların bedensel rahatsızlık yaşama riski taşıdığına işaret etmektedir. Psikiyatrik ve psikolojik incelemelerin yanı sıra bu davranışları gösteren otizmli bireylere kapsamlı bir yaklaşım ve bütüncül bir tedavi uygulanmasının önemi ortaya çıkmaktadır.
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    Leveraging technology for the wellbeing of individuals with autism spectrum disorder and their families during COVID-19
    (Frontiers Media Sa, 2021) Shohieb, Samaa M.; Doenyas, Ceymi; PhD Student; Koç University Research Center for Translational Medicine (KUTTAM) / Koç Üniversitesi Translasyonel Tıp Araştırma Merkezi (KUTTAM); Graduate School of Social Sciences and Humanities; 277852
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    Augmentative and alternative communication system utilization data of Turkish children with autism
    (Gazi Üniversitesi, 2019) Gündoğdu, Duygu; Elçik, Hasan Zafer; Doenyas, Ceymi; PhD Student; Graduate School of Social Sciences and Humanities; 277852
    Augmentative and Alternative Communication (AAC) is a technique that helps individuals with speech problems to communicate. They help individuals with autism spectrum disorder (ASD) who have language difficulties express themselves. AAC tools have started appearing in mobile platforms and are becoming more widespread. Though some research points to the advantages of AAC tools for special needs populations, no studies have yet presented or analyzed data about real life utilization of these tools by targeted individuals. The aim of this study was to analyze the data collected from the AAC module in Otsimo, an application that turns mobile devices into educational platforms for children with ASD, and to present suggestions for the improvement of AAC modules based on this data. The words that were used the most were determined for different utilization methods and possible reasons for their high utilization were listed. Then, recommendations were made in order to facilitate the creation of more user-friendly AAC tools to assist and improve the life qualities of individuals with communication disorders and other disorders with implicated language problems such as ASD. /Öz: Konuşma güçlüğü çeken bireylerin iletişim kurmalarına yardımcı olan Alternatif Destekleyici İletişim (ADİ) teknikleri, mobil cihazlarda yer almaya ve yaygın olarak kullanılmaya başlamıştır. ADİ yöntemlerinin konuşma zorlukları yaşayan bireylerin hayatlarını kolaylaştırdığı daha önce yapılan çalışmalarla gösterilmiştir. Özellikle otizm spektrum bozukluğu (OSB) için faydaları sıklıkla dile getirilen ADİ uygulamalarının gerçek hayatta nasıl kullanıldığını yansıtan verilerin sunulduğu bir çalışma henüz bulunmamaktadır. Bu çalışmanın amacı, OSB’ye sahip bireylerin okulda gördükleri eğitime ek olarak sunulan bir ADİ sisteminin kullanım verilerini incelemek ve bu tür uygulamaların geliştirilmesi adına faydalı olmaktır. Bu çalışmada, mobil cihazları çocuklar için evde eğitim platformuna dönüştüren Otsimo uygulamasında bulunan ADİ modülünden toplanan anonim veriler analiz edilerek raporlanmıştır. Mevcut seslendirme yöntemlerinden elde edilen veriler incelenmiş, en çok kullanılan kelimeler sunularak bu kelimelerin sık kullanımına yol açabilecek olası sebepler belirtilmiştir. Bu analizlerin sonucunda elde edilen veriler üzenden iletişim bozukluğu yaşayan bireylerin günlük hayatlarını kolaylaştırabilmek ve ADİ uygulamalarını geliştirmek adına öneriler sunulmuştur.
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    Theory of mind in action: use of mental state understanding in social interactions
    (Akdeniz Üniversitesi Edebiyat Fakültesi, 2019) Doenyas, Ceymi; PhD Student; Graduate School of Social Sciences and Humanities; 277852
    Theory of mind (ToM) research mostly focuses upon the age at which children can pass laboratory ToM tasks, with less attention paid to how these acquired ToM abilities are actually used. We outline situational, social, and personal factors that may influence the deployment of ToM abilities in social settings. Although research on the social utilization of ToM is nascent, we wish to draw attention with this brief review to the need for, and the possibility of, a shift in focus in the field from the time of acquisition, to conditions helping or hampering the deployment of ToM in social contexts for children, as well as for adults. Such a perspective can help situate the extensive laboratory findings on ToM in reallife contexts and move closer to understanding the role of this socio-cognitive ability in actual social interactions, which is only natural given that ToM is considered as one of the foundations for social understanding. /Öz: Zihin kuramı araştırmaları çoğunlukla çocukların laboratuvar ortamlarında sunulan zihin kuramı görevlerini geçmeye başladıkları yaşın ne olduğuna odaklanır ve edinilen zihin kuramı becerilerinin gerçekte nasıl kullanıldığına daha az önem verir. Bu makalede, edinilen zihin kuramı becerilerinin sosyal ortamlarda uygulanmasını etkileyebilecek durumsal, sosyal ve kişisel faktörler incelenmiştir. Bu makale ile alanda zihin kuramının edinilme yaşından ziyade sosyal hayatta kullanımına yardımcı olan ya da engelleyen koşullara odaklanmanın, bu sosyal içerikli becerinin tanımına uygun bir şekilde incelenmesi için önemli olduğunu vurgulamak istemekteyiz. Çocuklar gibi yetişkinler için de bu becerinin edinilmiş olması, sosyal ortamlarda kullanılacağı anlamına gelmemekte ve yetişkinlerin zihin kuramı becerilerini hangi koşullarda daha fazla veya daha az kullanıldığının incelenmesi de önem taşımaktadır. Bu tür bir bakış açısı, zihin kuramı üzerine yapılmış kapsamlı laboratuvar bulgularını gerçek hayatın bağlamında yerleştirmeye yardımcı olabilir. Böylece, sosyo-bilişsel kabiliyetin gerçek sosyal etkileşimlerdeki rolünü anlamaya daha da yaklaşılabilir, ki bu da zihin kuramının sosyal anlayışın temellerinden biri olduğu düşünüldüğünde böyle bir yaklaşımın ne kadar gerekli olduğunun altını çizmektedir.
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    Gut microbiota as the mechanism enabling the effects of environment and diet on autism
    (Türk Mikrobiyoloji Cemiyeti, 2019) Doenyas, Ceymi; Teaching Faculty; Koç University Research Center for Translational Medicine (KUTTAM) / Koç Üniversitesi Translasyonel Tıp Araştırma Merkezi (KUTTAM); 277852
    Autism spectrum disorder (ASD) is a neurodevelopmental difference with rising prevalence and no known etiology. This article discusses the mechanism by which the environmental factors suggested to play a role in the emergence of ASD may influence a neurological disorder. The global interest in gut microbiota in the recent years produced research results that reveal how these bacteria are affected by environmental factors and how they can affect the nervous system. The effects of environmental factors and diet on gut microbiota have also begun to emerge in the recent years. In this article, these findings are overviewed and their significance is discussed. This discourse is concluded by proposing combined treatments that target the gut microbiota for individuals with ASD. / Otizm spektrum bozukluğu (OSB), nedeni henüz bilinmeyen ve giderek yaygınlığı artan nörogelişimsel bir farklılıktır. Bu makale, OSB’nin ortaya çıkmasında rolü olduğu öne sürülen çevreseletkenlerin hangi mekanizma üzerinden nörolojik bir rahatsızlığı etkileyebileceği konusunu elealmaktadır. Son yıllarda bağırsak mikrobiyotasına olan ilgi ve bu doğrultuda yapılan çalışmalar,bu bakterilerin çevresel faktörlerden nasıl etkilendiğini ve sinir sistemi üzerinde nasıl etkileroluşturabildiğini göstermiştir. Çevresel etkenler ve beslenmenin bağırsak mikrobiyotası üzerindeki etkileri de son yıllarda açığa çıkmaya başlamıştır. Makalede, bu çalışmalar derlenerekbulguları ve önemleri tartışılmış, son olarak ise bu bilgiler ışığında otizm için oluşturulabilecekyeni, bileşik tedaviler önerilmiştir.
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    Not just a sum of its parts: how tasks of the theory of mind scale relate to executive function across time
    (Elsevier, 2018) Yavuz, H. Melis; N/A; Department of Psychology; Doenyas, Ceymi; Selçuk, Bilge; PhD Student; Faculty Member; Department of Psychology; Graduate School of Social Sciences and Humanities; College of Social Sciences and Humanities; N/A; 52913
    There is a well-established relationship between theory of mind (ToM) and executive function (EF) during the preschool years. However, less is known about the concurrent and longitudinal relations between EF and specific tasks tapping different aspects of ToM. The current study investigated the ToM-EF relationship across 1 year in 3- to 5-year-old Turkish children using the ToM battery of Wellman and Liu (2004), which measures understanding of diverse desires (DD), diverse beliefs (DB), knowledge access (KA), contents false belief (CFB), explicit false belief (EFB), and hidden emotion (HE). This battery has not yet been used in its entirety to test the predictive relations between ToM and EF. We used peg tapping and day-night tasks to measure EF. Our sample comprised 150 Turkish preschool children (69 girls) aged 36-60 months at Time 1 (T1) and 49-73 months at Time 2 (T2). Using the ToM composite with all six tasks, when child's age, receptive language, and T1 ability level (EF or ToM) were controlled, T1 EF significantly predicted T2 ToM, whereas Tl ToM did not predict 12 EF. Among DD, DB, KA, false belief understanding (FBU: the composite score of CFB and EFB), and HE, only KA and FBU were significantly associated with EF at T1 and T2. Further regression analyses showed that KA did not have a predictive relationship with EF. Instead, FBU drove the predictive EF-ToM relationship across time. Thus, in Turkish children, earlier EF predicts later ToM, but especially the FBU component, in this well-validated battery. (C) 2017 Published by Elsevier Inc.