Publication:
Heart at the center of life: an in-depth examination of the experiences in the life journeys of adolescents diagnosed with congenital heart disease

dc.contributor.coauthorAy, Ayşe
dc.contributor.departmentKUH (Koç University Hospital)
dc.contributor.departmentGraduate School of Health Sciences
dc.contributor.departmentSchool of Nursing
dc.contributor.kuauthorKızılkaya, Mete Han
dc.contributor.kuauthorÖzcan, Aslıhan
dc.contributor.kuauthorSemerci, Remziye
dc.contributor.kuauthorUmaç, Eyşan Hanzade
dc.contributor.schoolcollegeinstituteGRADUATE SCHOOL OF HEALTH SCIENCES
dc.contributor.schoolcollegeinstituteKUH (KOÇ UNIVERSITY HOSPITAL)
dc.contributor.schoolcollegeinstituteSCHOOL OF NURSING
dc.date.accessioned2025-03-06T20:59:20Z
dc.date.issued2024
dc.description.abstractBackground: The experiences and needs of adolescents undergo significant changes due to the rapid physiological, psychological, and social transformations that occur during this period. Examining the experiences of adolescents with chronic diseases throughout their life journeys will help to identify and meet their needs. This study aims to contribute to the literature gap by focusing on the experiences of adolescents with congenital heart disease (CHD) during their life journey. Methods: This qualitative study included 17 adolescents diagnosed with CHD and was conducted in two hospitals between January and November 2023. Data collection included face-to-face semi-structured interviews with participants, while analysis was conducted using MAXQDA software. Results: The findings revealed three main themes describing the experiences in the life journeys of adolescents with CHD. These are the Emotional Journey: Remembering the Past and Persoal Challenges;the Health Journey: Attitudes of Health Professionals and Information Sharing;and the Social Journey: Relationships with peers, teachers, and family members. Conclusion: This study provides valuable insights into the experiences of adolescents living with CHD and highlights the emotional, health, and social challenges they face. Application to practice: The study suggests that healthcare providers should prioritize building solid relationships with adolescents with CHD, involving them in decision-making and meeting their emotional needs. Public awareness about CHD should also be increased to reduce stigma. A multidisciplinary approach is crucial to optimize health outcomes and quality of life for adolescents with CHD.
dc.description.indexedbyWOS
dc.description.indexedbyScopus
dc.description.indexedbyPubMed
dc.description.publisherscopeInternational
dc.description.sponsoredbyTubitakEuN/A
dc.description.sponsorshipAcknowledgments
dc.identifier.doi10.1016/j.pedn.2024.08.027
dc.identifier.issn0882-5963
dc.identifier.quartileQ2
dc.identifier.scopus2-s2.0-85203250346
dc.identifier.urihttps://doi.org/10.1016/j.pedn.2024.08.027
dc.identifier.urihttps://hdl.handle.net/20.500.14288/27659
dc.identifier.volume79
dc.identifier.wos1312228900001
dc.keywordsCongenital heart disease
dc.keywordsAdolescents
dc.keywordsLife experiences
dc.language.isoeng
dc.publisherElsevier
dc.relation.ispartofJournal of Pediatric Nursing: Nursing Care of Children and Families (JPN)
dc.subjectNursing
dc.subjectPediatrics
dc.titleHeart at the center of life: an in-depth examination of the experiences in the life journeys of adolescents diagnosed with congenital heart disease
dc.typeJournal Article
dspace.entity.typePublication
local.publication.orgunit1GRADUATE SCHOOL OF HEALTH SCIENCES
local.publication.orgunit1SCHOOL OF NURSING
local.publication.orgunit1KUH (KOÇ UNIVERSITY HOSPITAL)
local.publication.orgunit2KUH (Koç University Hospital)
local.publication.orgunit2School of Nursing
local.publication.orgunit2Graduate School of Health Sciences
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