Publication:
Listening to urticaria patients through social media: analyzing the impact of the Covid-19 pandemic

dc.contributor.coauthorTurk, Murat
dc.contributor.coauthorBaysal, Bora
dc.contributor.coauthorErtas, Ragip
dc.contributor.coauthorSalman, Andac
dc.contributor.departmentSchool of Medicine
dc.contributor.kuauthorKocatürk Göncü, Özgür Emek
dc.contributor.schoolcollegeinstituteSCHOOL OF MEDICINE
dc.date.accessioned2025-03-06T20:57:39Z
dc.date.issued2024
dc.description.abstractObjective: Urticaria patients possess a significant demand for understanding their condition, a need that traditional patient-reported outcome measures fail to gauge accurately. This social media listening (SML) study aimed to assess the impact of urticaria on patients' expressions on various social media platforms (SMP). Materials and Methods: Using keyword-based search, a social media data scraping tool was used to identify all publicly available social media posts on urticaria. The content was manually curated to analyze and map psychological aspects with descriptive statistics applied on aggregated findings. Results were compared as pre-COVID-19 period and COVID-19 period. Results: Overall, 34242 content (8763 content by 5238 unique users in the pre-COVID-19 period and 25479 content by 14546 unique users in the COVID-19 period) about urticaria were identified. X (Twitter) was the most frequently used (44%) SMP. Itching (14383 content, 42%), redness (11348 content, 33%) and swelling (5314 content, 16%) were the most frequently posted distressing symptom. Common patient expressions of symptoms included "pain", "getting bored", "embarrassment", and "helplessness". Chemical cleaners (4553 posts) and stress/upset (4809 posts) were the most common causes of urticaria from the patients' perspective, in the pre-COVID and COVID-19 periods, respectively. Patients mentioned that treatment of urticaria is a long and tiring process, and often try to manage their urticaria by avoiding triggers. Conclusion: Our SML analysis showed the severe emotional impact of urticaria on the patients. The COVID-19 pandemic influenced access to care and patient expression about the disease. Understanding these challenges is crucial for healthcare professionals and organizations aiming to effectively address and support individuals with urticaria.
dc.description.indexedbyWOS
dc.description.publisherscopeInternational
dc.description.sponsoredbyTubitakEuN/A
dc.description.sponsorshipThis study was supported by Novartis Pharma AG. Novartis supported the design, data collection, and the data analysis of the study. The comments, views and conclusions set out in the manuscript rep-resent those of the authors, independent of any input or influence from Novartis Turkey.
dc.identifier.doi10.21911/aai.2024.692
dc.identifier.grantnoNovartis Pharma AG;Novartis
dc.identifier.issn1308-9234
dc.identifier.issue1
dc.identifier.quartileQ4
dc.identifier.urihttps://doi.org/10.21911/aai.2024.692
dc.identifier.urihttps://hdl.handle.net/20.500.14288/27259
dc.identifier.volume973
dc.identifier.wos1375466800001
dc.keywordsUrticaria
dc.keywordsChronic spontaneous urticaria
dc.keywordsSocial media listening
dc.keywordsPatient-reported outcomes
dc.keywordsCovid-19
dc.language.isoeng
dc.publisherTurkish Natl Soc Allergy and Clinical Immunology
dc.relation.ispartofASTHMA ALLERGY IMMUNOLOGY
dc.subjectAllergy
dc.titleListening to urticaria patients through social media: analyzing the impact of the Covid-19 pandemic
dc.typeJournal Article
dspace.entity.typePublication
local.contributor.kuauthorKocatürk Göncü, Özgür Emek
local.publication.orgunit1SCHOOL OF MEDICINE
local.publication.orgunit2School of Medicine
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