Publication:
Examining online practices of an autism parent community in Turkey: goals, needs, and opportunities

dc.contributor.departmentDepartment of Media and Visual Arts
dc.contributor.departmentKUAR (KU Arçelik Research Center for Creative Industries)
dc.contributor.departmentSchool of Medicine
dc.contributor.departmentGraduate School of Social Sciences and Humanities
dc.contributor.kuauthorYıldız, Zeynep
dc.contributor.kuauthorGatos, Doğa Çorlu
dc.contributor.kuauthorSubaşı, Özge
dc.contributor.kuauthorYantaç, Asım Evren
dc.contributor.kuauthorKuşçu, Kemal
dc.contributor.kuprofilePhD Student
dc.contributor.kuprofilePhD Student
dc.contributor.kuprofileFaculty Member
dc.contributor.kuprofileFaculty Member
dc.contributor.kuprofileOther
dc.contributor.schoolcollegeinstituteGRADUATE SCHOOL OF SOCIAL SCIENCES AND HUMANITIES
dc.contributor.schoolcollegeinstituteCollege of Social Sciences and Humanities
dc.contributor.schoolcollegeinstituteSCHOOL OF MEDICINE
dc.contributor.schoolcollegeinstituteResearch Center
dc.contributor.yokidN/A
dc.contributor.yokidN/A
dc.contributor.yokid240920
dc.contributor.yokid52621
dc.contributor.yokidN/A
dc.date.accessioned2024-11-09T23:20:19Z
dc.date.issued2019
dc.description.abstractAutism is a complex, life-long condition that manifests itself in unique ways in each person. Due to the complexity of the condition along with not having efficient and immediate social support, parents with autistic children often seek for and rely upon the information generated by the community (parents, caregivers, autistics and experts) on online platforms. We look into what parents of autistic individuals discuss on an online platform in Turkey, how they practice autism online and why those practices are important or relevant. Our findings show how parents cope with understanding and defining autism, and how they seek for empowering each other, and managing the everyday collectively under a dominant medical discourse around autism in Turkish context. Based on our findings, we extend the existing knowledge on collective and alternative ways of re-defining autism as lived experience and introduce recommendations on how those strategies can be integrated to design.
dc.description.indexedbyWoS
dc.description.indexedbyScopus
dc.description.openaccessNO
dc.description.publisherscopeInternational
dc.identifier.doi10.1145/3322276.3322344
dc.identifier.isbn978-1-4503-5850-7
dc.identifier.quartileN/A
dc.identifier.scopus2-s2.0-85070635613
dc.identifier.urihttp://dx.doi.org/10.1145/3322276.3322344
dc.identifier.urihttps://hdl.handle.net/20.500.14288/10693
dc.identifier.wos717008300032
dc.keywordsAutism, ASD
dc.keywordsChildren with developmental disabilities
dc.keywordsHealth information and communication
dc.keywordsDigital ethnography
dc.keywordsRethinking medical discourse
dc.keywordsCaregiver
dc.keywordsOnline communities
dc.keywordsPostcolonial computing
dc.keywordsPostcolonial health
dc.keywordsGlobal south
dc.languageEnglish
dc.publisherassoc Computing Machinery
dc.sourceProceedings of the 2019 acm Designing Interactive Systems Conference (Dis 2019)
dc.subjectComputer science
dc.subjectCbernetics
dc.subjectMathematics
dc.subjectSoftware Electrical electronics engineerings engineering
dc.subjectHuman engineering
dc.titleExamining online practices of an autism parent community in Turkey: goals, needs, and opportunities
dc.typeConference proceeding
dspace.entity.typePublication
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local.contributor.authorid0000-0001-6094-1361
local.contributor.authorid0000-0002-3610-4712
local.contributor.authoridN/A
local.contributor.kuauthorYıldız, Zeynep
local.contributor.kuauthorGatos, Doğa Çorlu
local.contributor.kuauthorSubaşı, Özge
local.contributor.kuauthorYantaç, Asım Evren
local.contributor.kuauthorKuşçu, Kemal
local.publication.orgunit1GRADUATE SCHOOL OF SOCIAL SCIENCES AND HUMANITIES
local.publication.orgunit1College of Social Sciences and Humanities
local.publication.orgunit1SCHOOL OF MEDICINE
local.publication.orgunit1Research Center
local.publication.orgunit2Department of Media and Visual Arts
local.publication.orgunit2KUAR (KU Arçelik Research Center for Creative Industries)
local.publication.orgunit2School of Medicine
local.publication.orgunit2Graduate School of Social Sciences and Humanities
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