The lived experiences of disabled individuals with stomas and of wound, ostomy, and continence nurses: a phenomenological study

Abstract

Understanding how individuals with various disabilities adapt to life with a stoma, and how wound, ostomy, and continence (WOC) nurses perceive and manage this care, is crucial for improving health care practice. This study aimed to reveal the experiences of disabled individuals with stomas and the WOC nurses who care for them. METHODS: This study utilized a qualitative descriptive phenomenological design. The sample consisted of 7 disabled individuals with stomas, and 7 WOC nurses who provided care to these individuals. Data were collected through one-on-one interviews using a semi-structured form. This study followed the steps of the Consolidated Criteria for Reporting Qualitative Research checklist. Data were analyzed thematically. RESULTS: The mean age of individuals with disabilities was 48 ± 11.12 years; 5 of them had paraplegia, 2 were visually impaired, and the mean age of WOC nurses was 42 ± 6.48 years. Thematic analysis identified 3 major themes for disabled individuals with stomas: (1) change, (2) stoma education, and (3) challenges in home care, and 3 themes for WOC nurses: (1) concern due to a lack of experience, (2) disability-appropriate training, and (3) compassionate care. CONCLUSIONS: Living with a stoma can have both positive and negative impacts on the quality of life of individuals with disabilities, depending on the disability type and personal experiences. The findings of this study underscore the need to develop targeted strategies to address the unique challenges faced by this population. Furthermore, the integration of disability-specific content into the certified training programs for WOC nurses is recommended to enhance the quality of stoma care.